Dear CHD 💔

Waking up to see your eyes swollen like this hurts my heart. CHD I wish you never existed. Why did you choose my son... or any child? CHD you've forced me to learn things and go through moments I would not wish on anyone. Swollen eyes = Fluid retention , which = poor heart function [...]

Routine

When people ask me how I manage my days my response is usually, "I Do Not Know." That is just the honest truth. For some sad people they think that I just stay at home all day with Jax and we have a grand ole time. That I haven't made any progress. How naive of [...]